THE ENDOLLS NOTEBOOK · ARCHIVE
Why Repeat Surgery Cannot Be the Only Endometriosis Strategy
May 04, 2026
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Watch the original video on TikTok
Full transcript of the original video, lightly edited for readability.
The problem with endometriomas are there is no size in endometrioma that there are there is a distinction whether who needs surgery is arbitrary so the endometrioma never gets smaller it bleeds and it's it when it bleeds it's terrible to do so I was tagged on this video and I wanted to respond to it cause it's a good video first and foremost I wanted to start off right respect what respect is due this man is a surgeon who is experienced in dealing with complex endometriosis cases and that does matter because when endometriosis reaches a certain level surgery is not really optional nor a luxury it is truly necessary so I wanted to be clear I'm not anti surgery and I'm not anti surgeon but there are a few things that I wanted to address because the conceptual hierarchy that's going on here is fundamentally wrong and honestly this is a reason why a lot of women are still stuck.
So let's explore this idea of the exploding endometrioma because. This is where it starts to go a little weird and endometriomas are not water balloons that detonate and scatter tissue all over the body yeah they can rupture and they do cause a lot of pain and they release contents like old blood inflammatory mediators cellular debris and it will cause pain to the local area via inflammation irritation as I'm sure many of these women that follow me know but the idea that this widespread dissemination from pelvis to thoracic cavity from an endometrioma is not something that we can confidently say because ultimately even if they this were to be true there are still so many obstacles for an endometriotic cell to implant successfully and become a lesion it's just not gonna happen just cause it landed on that tissue and there's also problem with that model because we routinely find that there are women with endometriosis they have it in places like the pouch of Douglas Colon diaphragm but they have no history of endometriomas.
So if endometriomas were the main driver of the spread this pattern wouldn't exist so then what are we actually looking at well we're looking at a disease that can appear in multiple locations without a clear singular mechanical explanation however that is where I diverge and I'll explain you see he calls he called it a disease of menstruation and I can understand why the retrograde menstruation is a clean simple and teachable model that fits into surgical and medical frameworks but it doesn't explain everything and it doesn't really come close to it it's not menstruation it's something much deeper because most of these mechanisms of physical mechanisms happen in the majority of women it's just not the majority of women that have endometriosis.
So what we're actually seeing is a disease of genetic and epigenetic dysregulation at a systems level problem. And here's a key idea that I've been trying to show on this channel these mutations these deregulated pathways are not isolated to one organ they may exist throughout the entire body but the way that they manifest it depends on the tissue that they're in same underlying dysfunction is just a different expressions. For example pelvic cavity endometriosis in the uterine wall adenomyosis on the skin we got melasma in the brain and the neurons we got fatigue brain fog mood disruption memory problems in the colon or the intestines we see bloating IBS like symptoms so on and so forth you see it's it's the same problem it's just a different result based on the context on the tissue that we're finding this dysfunctioning and.
This is why surgery while it's critical has a limitation that no one talks about because yes removing the lesions is important but the reality is the cases are truly life changing are fewer than those that persist even when lesions are removed the fatigue never really goes away and the intestinal problems don't really go away and the system that causes endometriosis to exist doesn't really ever go away either and more importantly if we identify some holes in surgery lesions look identical to surrounding tissue there are microscopic implants like a single aborted cell like these are very difficult to remove even the world's best surgeons cannot remove what they cannot see so this isn't entirely a skill issue it's a biological limitation.
This is why we see such a high recurrence rate it's not because the surgeon failed but because the disease is not purely structural it's systemic. And here's the problem with that and we keep looking at this concept and just sticking to this concept a a woman can only go under we they they can only undergo under so many surgeries before we start altering the anatomical frame of the body because then this creates new problems due to adhesions scar tissue and just overall functional disruption so well yes surgery is necessary especially in advanced cases it's not the full answer this brings me to.
The final point we have to stop pretending that trust and transparency are the same thing as long term benefit at this point if we keep playing that car people are just pandering to you they're not really giving you anything. So yes record the surgery build the trust get tissue diagnosis all of that matters but none of that fixes the fact that you're going to continue to suffer because we're not fully addressing what the disease actually is you must understand that care is not difficult because the disease is mysterious we have seven years of a track record to prove that care is difficult because we are still approaching it as if it's something to be primarily cut out as a menstrual disease instead of being understood that there's something going wrong at the molecular level you see I'm I know my place I'm not a surgeon and that one and women absolutely need surgeons I am just someone that has had to master numerous disciplines to understand what this disease is doing because you see if we only focus on removing what we can see we ignore that there's an underlying machinery that has gone a rise it's just wrong and it will keep repeating and doing the same thing over and over and over again you're gonna get cut relief recurrence then cut again that's not really resolution that's maintenance and you can only do this for so long so women do deserve more and that's the reason I dedicated such a huge part of my life to this disease because of my my wife and and my daughter you see over the tens and thousands of hours I've dedicated to the disease on this channel we have posted videos that have identified the patterns that have been the turning point for many women we making their experiences finally make sense even our endometriosis quiz has had incredible results by women that have had surgeries and they have stated that it's extremely accurate but truly the reality that speaks louder volume since the seven years we've been running since 2019 we have genuinely changed the tide for so many women we we made a product and there's nothing simple about it mind you the very principles and science that I've spoken on this channel are the ones we have implemented onto this product and it has changed the paradigm how we look at this disease you see the modern day approaches focusing on changing the aftermath our approach is using systems biology to change the playing field when it comes to being an end warrior and those two things are very different.
